segunda-feira, 7 de dezembro de 2009
Olá!
O mundo está agitado, tem saído muita coisa nova, muitas notícias, e isso é realmente empolgante.
Nesta quinta-feira o Dr. Luiz Augusto Franco de Andrade estará na Associação Brasil Parkinson, ONG da qual faço parte, palestrando sobre pesquisas e cirurgias que vêm sendo realizadas no Hospital Albert Einstein, em São Paulo, para tratamento de portadores da doença de Parkinson.
Fica aberto o convite a todos os interessados, e a promessa de que logo mais postarei as novidades que eu encontrar por lá!
Até mais,
Daniela.
Herói do mês: Muhammad Ali
A lenda do boxe, Muhammad Ali, ou Cassius Clay, nascido no estado de Kentucky em 1942, tem lutado contra a doença de Parkinson, não só por ele mas por muitos.
Em 1954, Cassius Clay teve sua bicicleta roubada fora do auditório Columbia. Clay chamou um policial de Louisville, Joe Martin, dizendo que ele iria atrás do culpado seja quem ele fosse. Martin, que treinava jovens boxeadores disse a Clay que seria melhor ele aprender a lutar primeiro.
O futuro campeão mundial fez sua estréia no boxe, ganhando quatro dólares por luta. Apenas seis anos depois ele já era o Campeão Mundial de Peso Leve. Aos 22 anos, ele era o Campeão Mundial de Peso Pesado.
Clay se tornou Muhammad Ali em 1964, após o anúncio de que havia se tornado um mebro da nação Islã. Seguindo os fundamentos de suas crenças religiosas, Ali se recusou a lutar no Vietnã. Em 1967 ele foi considerado culpado de se recusar a lutar nas forças armadas, perdeu seu passaporte, o título de sua associação de boxe e foi banido do boxe por três anos.
Apesar da proibição ele recuperou seu título em 1974. Em 1981 Ali se aposentou do boxe e três anos depois anunciou seu diagnóstico de doença de Parkinson.
Desde então Ali levantou mais de 45 milhões de dólares para a doença, e nunca aceitou sua condição como algo debilitante mas sim como um meio de se conectar com as pessoas.
Barack Obama, escrevendo sob o título "O Que Muhammad Ali Significa Para Mim" no 50° aniversário da medalha de ouro olímpica de Ali, escreveu: “Nós admiramos o homem que, enquanto sua fala se torna mais suave e seu movimento mais restrito pelo avanço da doença de Parkinson, nunca perdeu a habilidade de criar uma conexão profunda e significativa com pessoas de todas as idades.”
Questionado por que é universalmente amado, ele levanta uma mão trêmula, com dedos largos, e diz: “É por causa disso. Agora eu sou mais humano. É o Deus em cada pessoa que as conecta comigo.”
Além de levantar fundos para o Parkinson, Ali foi nomeado Mensageiro de Paz das Nações Unidas, e tem viajado pelo mundo para visitar crianças doentes.
Como Obama diz, ele “nunca parou de usar sua celebridade para o bem”.
Como Obama diz, ele “nunca parou de usar sua celebridade para o bem”.
Autor: Melanie Scagliarini
Fonte: http://www.sidewaysnews.com/science-technology/hero-month-muhammad-ali
Uso de videogame no tratamento da doença de Parkinson
Uma combinação de exercício e videogame pode auxiliar o tratamento de pacientes com doença de Parkinson. Por Dr. Sanjay Gupta.
http://www.kvue.com/home/Using-video-games-to-treat-Parkinsons-disease-78404762.html
O trabalho é interessante, e por combinar ao exercício físico tarefas como percepção e coordenação visuo-espacial, torna-se muito útil no tratamento de portadores da doença de Parkinson.
No Brasil infelizmente ainda é um recurso disponível para poucos, tendo em vista o custo do equipamento. Porém para clínicas, escolas e grandes centros de reabilitação isso é possível e tem se tornado uma ferramenta muito útil para nosso trabalho de reabilitação desses pacientes.
quarta-feira, 2 de dezembro de 2009
Constipação pode ser um sinal precoce da doença de Parkinson
Constipation may represent one of the earliest signs of Parkinson's disease, preceding the onset of motor symptoms by two decades or more, data from a case-control study suggest.Patients with Parkinson's disease were more than twice as likely to report a history of constipation compared with a control population. The association remained significant after controlling for other factors associated with constipation, according to a report in the December issue of Neurology.Though constipation is not specific for Parkinson's disease, the findings are consistent with the hypothesis that Parkinson's disease adversely affects autonomic function early in the course of pathogenesis."Our findings may suggest that constipation is an early manifestation of the neurodegenerative process underlying Parkinson's disease, and that it frequently precedes the classic motor signs of Parkinson's disease by several decades in both men and women," Walter A. Rocca, MD, of the Mayo Clinic in Rochester, Minn., and colleagues concluded.
However, they cautioned that "there are alternative explanations for this association."
Autonomic dysfunction is a recognized component of the pathogenetic process of Parkinson's disease, and Lewy bodies are consistently found in the autonomic nervous system of patients who have died with Parkinson's disease.
Constipation is one of the most common manifestations of autonomic dysfunction and often is present at the onset of motor symptoms or progression of Parkinson's disease, the authors noted.
In some cases, constipation may precede the onset of motor symptoms in Parkinson's patients. Data from the Honolulu-Asia Aging Study showed that men who reported less frequent bowel movements had an increased risk of Parkinson's disease during a 24-year follow-up period (Neurology 2001; 57: 456-62, J Neurol 2003; 250(suppl 3): III30-39).
Other reports from the Honolulu study described an association between constipation and incidental Lewy body disease and a reduced neuronal density in the substantia nigra (Mov Disord 2007; 22: 1581-86, Mov Disord 2009; 24: 371-76).
Consistent with clinical and pathologic findings, the Braak staging system of Parkinson's disease neuropathology predicts early involvement in the disease process (Neurosci Lett 2006; 396: 67-72).
Continuing this line of work, investigators reviewed medical records of participants in the Rochester Epidemiology Project. They identified all patients who developed Parkinson's disease (by conventional diagnostic criteria) from 1976 through 1995. Each case was matched by age and sex with a member of the general population of participants in the epidemiologic study.
Investigators defined constipation as a diagnosis of constipation in the medical records or use of drugs to treat constipation, even in the absence of a diagnosis.
The analysis revealed 196 patients who developed Parkinson's disease during the period reviewed. The authors found that 71 (36.2%) patients with Parkinson's disease had a history of constipation compared with 40 (20.4%) of the control group. The difference translated into an odds ratio of 2.48 for cases versus controls (95% CI 1.49 to 4.11, P=0.0005).
The association between constipation and Parkinson's disease remained significant after adjusting for smoking and coffee consumption and exclusion of possible drug-induced constipation.
Moreover, the association remained significant in an analysis limited to patients with constipation documented 20 or more years before the onset of motor symptoms of Parkinson's disease (OR 2.98, 95% CI 1.48 to 6.03, P=0.002).
The association was stronger in women (OR 3.38) than in men (OR 1.92) and in patients with rest tremor versus those without, but the differences did not reach statistical significance.
Although the data supported the biologic plausibility of constipation as an early nonmotor manifestation of Parkinson's disease, the authors offered several alternative explanations:
Constipation and Parkinson's disease could be independent manifestations of an unknown risk factor
The association might reflect a genetic susceptibility
Constipation might have an indirect, but causal, role in Parkinson's disease, such as increased intestinal absorption of substances toxic to the substantia nigra
"However, the evidence in support of these alternative interpretations remains limited," the authors said.
Autonomic dysfunction is a recognized component of the pathogenetic process of Parkinson's disease, and Lewy bodies are consistently found in the autonomic nervous system of patients who have died with Parkinson's disease.
Constipation is one of the most common manifestations of autonomic dysfunction and often is present at the onset of motor symptoms or progression of Parkinson's disease, the authors noted.
In some cases, constipation may precede the onset of motor symptoms in Parkinson's patients. Data from the Honolulu-Asia Aging Study showed that men who reported less frequent bowel movements had an increased risk of Parkinson's disease during a 24-year follow-up period (Neurology 2001; 57: 456-62, J Neurol 2003; 250(suppl 3): III30-39).
Other reports from the Honolulu study described an association between constipation and incidental Lewy body disease and a reduced neuronal density in the substantia nigra (Mov Disord 2007; 22: 1581-86, Mov Disord 2009; 24: 371-76).
Consistent with clinical and pathologic findings, the Braak staging system of Parkinson's disease neuropathology predicts early involvement in the disease process (Neurosci Lett 2006; 396: 67-72).
Continuing this line of work, investigators reviewed medical records of participants in the Rochester Epidemiology Project. They identified all patients who developed Parkinson's disease (by conventional diagnostic criteria) from 1976 through 1995. Each case was matched by age and sex with a member of the general population of participants in the epidemiologic study.
Investigators defined constipation as a diagnosis of constipation in the medical records or use of drugs to treat constipation, even in the absence of a diagnosis.
The analysis revealed 196 patients who developed Parkinson's disease during the period reviewed. The authors found that 71 (36.2%) patients with Parkinson's disease had a history of constipation compared with 40 (20.4%) of the control group. The difference translated into an odds ratio of 2.48 for cases versus controls (95% CI 1.49 to 4.11, P=0.0005).
The association between constipation and Parkinson's disease remained significant after adjusting for smoking and coffee consumption and exclusion of possible drug-induced constipation.
Moreover, the association remained significant in an analysis limited to patients with constipation documented 20 or more years before the onset of motor symptoms of Parkinson's disease (OR 2.98, 95% CI 1.48 to 6.03, P=0.002).
The association was stronger in women (OR 3.38) than in men (OR 1.92) and in patients with rest tremor versus those without, but the differences did not reach statistical significance.
Although the data supported the biologic plausibility of constipation as an early nonmotor manifestation of Parkinson's disease, the authors offered several alternative explanations:
Constipation and Parkinson's disease could be independent manifestations of an unknown risk factor
The association might reflect a genetic susceptibility
Constipation might have an indirect, but causal, role in Parkinson's disease, such as increased intestinal absorption of substances toxic to the substantia nigra
"However, the evidence in support of these alternative interpretations remains limited," the authors said.
By Charles Bankhead, Staff Writer, MedPage TodayPublished: December 02, 2009Reviewed by Zalman S. Agus, MD; Emeritus Professor University of Pennsylvania School of Medicine.
segunda-feira, 16 de novembro de 2009
Reabilitação na doença de Parkinson - From Índia
Parkinson’s disease is a degenerative disease of the brain that often impairs motor skills, speech, and other functions. It belongs to a group of conditions called movement disorders and it typically affects movement and thus the day to day functioning of the patient.
Rehabilitation has an important impact on reducing functional limitations and disability and promoting optimal health in a patient with Parkinson’s disease. The enhancement of quality of life is the most important outcome for individuals with a chronic Parkinsonism.
Restorative rehabilitation or the rehabilitation aimed at restoring the functions is focused on improvement of strength, Range of motion (ROM), functional performance, endurance and so forth using remedial and compensatory training strategies.
Individuals from Parkinson’s also benefit a lot from “Functional maintenance programs”. These programs are designed to manage the effects of progressive disease. Strategies are developed to prevent or slow decline of function, and promote regular exercise, good health, and self management skills.
For optimal management of a Parkinson’s patient a coordinated team of health professionals, including the physician, nurse, physical therapist, occupational therapist and speech/ language pathologist work in close unison. Consultation to other specialists like nutritionist, gastroenterologist, urologist, pulmonologist, is also done, if need be. This dedicated team has a focus on long range planning which is critical for effective management.
The patient and the family member are considered the key members of the team in the rehabilitation of a parkinson’s patient who are fully involved in all aspects of the treatment planning process.
For detailed information on Parkinson’s rehabiliation please log on to www.indicure.com, www.indicurerehabilitation.com, or write to drruchika.m@gmail.com
Rehabilitation has an important impact on reducing functional limitations and disability and promoting optimal health in a patient with Parkinson’s disease. The enhancement of quality of life is the most important outcome for individuals with a chronic Parkinsonism.
Restorative rehabilitation or the rehabilitation aimed at restoring the functions is focused on improvement of strength, Range of motion (ROM), functional performance, endurance and so forth using remedial and compensatory training strategies.
Individuals from Parkinson’s also benefit a lot from “Functional maintenance programs”. These programs are designed to manage the effects of progressive disease. Strategies are developed to prevent or slow decline of function, and promote regular exercise, good health, and self management skills.
For optimal management of a Parkinson’s patient a coordinated team of health professionals, including the physician, nurse, physical therapist, occupational therapist and speech/ language pathologist work in close unison. Consultation to other specialists like nutritionist, gastroenterologist, urologist, pulmonologist, is also done, if need be. This dedicated team has a focus on long range planning which is critical for effective management.
The patient and the family member are considered the key members of the team in the rehabilitation of a parkinson’s patient who are fully involved in all aspects of the treatment planning process.
For detailed information on Parkinson’s rehabiliation please log on to www.indicure.com, www.indicurerehabilitation.com, or write to drruchika.m@gmail.com
About the Author:
Dr Ruchika is Head of the patient care services at Indicure, the premier Healthcare Company of India, which provides expert medical advice and complete healthcare facilitation to patients globally.Read more: http://www.healthpress.us/rehabilitation-in-parkinson%E2%80%99s-disease/#ixzz0X1NpNJcu
Dr Ruchika is Head of the patient care services at Indicure, the premier Healthcare Company of India, which provides expert medical advice and complete healthcare facilitation to patients globally.Read more: http://www.healthpress.us/rehabilitation-in-parkinson%E2%80%99s-disease/#ixzz0X1NpNJcu
quinta-feira, 10 de setembro de 2009
Victoria Parkinson | Skill Tester

A Agência DDB/Rapp da Austrália lançou uma campanha diferente para mostrar às pessoas o como é difícil conviver com a doença de Parkison. Devido aos tremores, à lentidão e à rigidez dos músculos, atividades comuns do dia-a-dia como atender um telefone ou pegar um relógio tornam-se tarefas complicadas para quem possui a doença. A agência colocou em algumas máquinas Grua (maquinas de pegar brinde) objetos do cotidiano, como relógio e tesoura, para que as pessoas experimentassem um pouco dessa sensação.
Aqui no Brasil ainda estamos carentes desse tipo de iniciativa. Frequentemente o portador da doença de Parkinson se vê diante de situações embaraçosas devido à falta de conhecimento que a população têm sobre a doença.
Mas contamos com o trabalho de profissionais, dos próprios pacientes e de entidades filantrópicas, como a Associação Brasil Parkinson, para possamos divulgar mais informações sobre a doença.
domingo, 26 de julho de 2009
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